Lord Geordie Posted February 26, 2014 Report Share Posted February 26, 2014 Our son is disabled; learning difficulties and epilepsy and now has cancer (if we could get a straight answer might not have long to live) and for 36 years we have encountered various forms of discrimination, the most upsetting of which has come from our local NHS. This is depressing for us but we have just learned to accept he will always be treated differently. The saddest thing is that, having been born normal (suffered an awful illness when 18mths old) he is quite a good looking lad and thus is expected to be normal but isn't. That can quite often be the case! My son was born with his problems! Mental and Physical! You can tell there is an issue just looking at him! My Girlfriends youngest Son has Autism too! But looking at him, you couldn't tell. Infact, if you sat and had a conversation with him, you probably couldn't tell either! He is happy and very likeable. When you change his routine he gets very grumpy and goes to his room and flicks the pages of an old book. He also has a great facility for facts and can recite a conversation held 8 hours ago word for word! My son has great difficulty expressing himself, He shows no emotion toward others! He shows outward signs of his problems, so people latch onto that and name call. He has to be prompted to take care of his personal hygene and tidy his room etc! He is 19 this year. I think Chris will be living at home for.as long as I live. I can not see Chris finding employment I would love to see him get on in life, but I don't think I will. Chris has Aspergers, Heart disease, Sprengals deformity and quite bad scolliosis of the spine! He has a deformed shoulder also. I have yet to find any interest he has other than computers! I have tried Shooting, fishing, camping and caravanning, gardening, biking, walking, shopping, art and crafts etc. Nothing seems to bring him out of his shell. He is near 19 is 5' 9" tall. 24" waist and 8 stone. It is extremely concerning to Me that Chris has no friends, but I can not force friends upon him. I have taken hin out to places were there are other kids! But Chris will not mingle. There are times I worry about potential problems like! If something happens to Me and I am not home! Will he cope for.a.long period of time? When He is out on his own! Will he be left to carry on with his day? Or.get harrasment from others? As a Parent I feel sad, I feel Chris will miss out on so many things, just because others look at him and think he is weird, rather than researching about mental health and trying to broaden their minds and showing a little understanding! Quote Link to comment Share on other sites More sharing options...
aris Posted February 26, 2014 Report Share Posted February 26, 2014 If he likes computers, encourage him in that direction. I've met many exceptional programmers who exhibit some of the behavioural traits you list. Quote Link to comment Share on other sites More sharing options...
bubble Posted March 4, 2014 Report Share Posted March 4, 2014 thank you to those that contributed to this post interesting to read the whole thread and see who thinks its funny, who thinks its serious and who is suffering [suffering or enjoying ] right now i don't think you really understand it until you experience it first hand. hats off to the sandwich maker, hats off to the computer programmers and thumbs up to the careers when i look back, I realise I have already met a few, helped a few and am now looking out for a few neill, trying to be patient with my fantastic 10 year old, in sunny cambridge Quote Link to comment Share on other sites More sharing options...
keg Posted March 4, 2014 Report Share Posted March 4, 2014 An interesting thread and one I have certainly learnt from. I remember either Magpie or Blue Peter running a money raising exercise for Autistic children back in the 70s. No one had really heard of it until then. Connected but separate, a Neurologist in the US called Richard Saul claims that ADHD does not exist. A couple of GP friends also claim this. Opinions? Quote Link to comment Share on other sites More sharing options...
bicykillgaz Posted March 4, 2014 Report Share Posted March 4, 2014 I might be wrong but surely the fact the guys sneaking round stealing stuff suggests a level of understand that what he's doing is wrong. Report it to the scheme you shouldn't have to put up with been stolen off regardless of disability. Quote Link to comment Share on other sites More sharing options...
bubble Posted March 4, 2014 Report Share Posted March 4, 2014 An interesting thread and one I have certainly learnt from. I remember either Magpie or Blue Peter running a money raising exercise for Autistic children back in the 70s. No one had really heard of it until then. Connected but separate, a Neurologist in the US called Richard Saul claims that ADHD does not exist. A couple of GP friends also claim this. Opinions? mmmmm......... neurologist vs pigeon shooter on the tricky subject of ADHD parents look for reasons and excuses as to why their child is different. are you suggesting ADHD is such a reason,and quoting opinions of experts? or something else, no good chucking in the hand granade, then standing back ;-) I have friends with 'ADHD' kids, I have an opinion about them, but keep quiet because I am not qualified to comment. but....... how qualified are some of the experts? google 'famous people with autism neill Quote Link to comment Share on other sites More sharing options...
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