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NHS data sharing


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I believe that the Data Protection Act does not require a body to notify everytime it uses your data PROVIDED it has informed you that it will and had sought an original consent. However if it has asked consent to use it for purpose X it should ask again for purpose Y. I guess it all depends on how they asked - did they use a wooly catch-all statement? Or things like opt-out (relying on human laziness to get a larger sample) which was the method behind the NHS Data thing - that and irritated GP's claiming life would be difficult, "what if you became seriously ill" etc. etc and "you have nothing to fear".

 

I understand the usefulness of mass data for medical research - Iceland did this with DNA - but I never quite trust the State, certainly don't trust business.

 

Wouldn't it be lovely if they did develop something groundbreaking for mankind and it became available to the world at cost of production only - yeah...pink piggies with wings.............

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Just think about the security implications of this regarding the new rules from 1st of April on gun owners. http://www.dailymail.co.uk/news/article-3573286/NHS-trust-handed-private-patient-details-Google-says-implied-permission-emerges-hospital-talks-internet-giant.html

 

 

The article does say that names are included in the data, but in an encrypted format, so that they cannot be read.

 

A trust spokesman said: 'The Royal Free London approached DeepMind with the aim of developing an app that improves the detection of acute kidney injury by immediately reviewing blood test results for signs of deterioration, then sending an alert and the results to the most appropriate clinician via a dedicated handheld device.

'Absolutely no patient- identifiable data is shared with DeepMind.

 

In addition, the data 'tag' that identifies you as FAC/SGC holder is on your GPs records. Not those held by hospitals.

 

It is, as usual for the Daily Wail, a complete non-story, being hyped up to get their usual audience (over 60s who hate everything 'new') frothing at the mouth.

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The article does say that names are included in the data, but in an encrypted format, so that they cannot be read.

 

A trust spokesman said: 'The Royal Free London approached DeepMind with the aim of developing an app that improves the detection of acute kidney injury by immediately reviewing blood test results for signs of deterioration, then sending an alert and the results to the most appropriate clinician via a dedicated handheld device.

'Absolutely no patient- identifiable data is shared with DeepMind.

 

In addition, the data 'tag' that identifies you as FAC/SGC holder is on your GPs records. Not those held by hospitals.

 

It is, as usual for the Daily Wail, a complete non-story, being hyped up to get their usual audience (over 60s who hate everything 'new') frothing at the mouth.

This :good:

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the data 'tag' that identifies you as FAC/SGC holder is on your GPs records. Not those held by hospitals.

Even if hospital staff did find out that an individual owned a gun, they probably would not care.

 

A more serious risk (and I suspect this may be what the OP was concerned about) is that somebody with terrorist affiliations might gain access to a central database, and obtain a complete list of all addresses where firearms are stored throughout the country. Can we assume that the data 'tag' forms part of the patient's Summary Care Record that allows information to be shared throughout the whole NHS system?

http://systems.hscic.gov.uk/scr

Any technician employed by any company doing computer system maintenance for the NHS might find it very simple to download a big data file onto a memory stick. Who will take a wager that there are no ISIS-sympathisers among them?

 

names are included in the data, but in an encrypted format, so that they cannot be read.

That might inspire confidence, if there were not so many reports of people (professional crooks, or just bored teenagers) finding it rather easy to beat encryption systems.

 

It is, as usual for the Daily Wail, a complete non-story, being hyped up to get their usual audience (over 60s who hate everything 'new') frothing at the mouth.

I admit to being over 60, but never read the Daily Mail. I neither hate everything 'new', nor admire things just because they ARE new. A headlong rush to record every person's data on a central computer system might not improve national security, and might actually be rather a daft idea. But it is not unknown for power-hungry individuals, whether politicians or senior managers, old or young, to have daft ideas.

 

The following is not a quote from George Orwell, it is a statement on the NHS website:

"On a local level some Clinical Commissioning Groups (CCGs) have started to integrate patients' health and social care records..... This is called Integrated Digital records."

http://www.nhs.uk/NHSEngland/thenhs/records/healthrecords/Pages/overview.aspx

Perhaps Big Brother really is watching you. Parents who live in Scotland are already aware that Big Sister is appointing state officials to take control of their children.

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I think I chose to 'opt out' of this when it was suggested some years ago, but not because I own firearms; I simply don't like the idea of my personal information being used on a nationwide basis. I realise it still probably is, but not with my willing consent.

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There's just been a crackdown round here of the nhs file contractors staff accessing information, seems it was a free for all on getting info on patients. Contractor now checks who's been accessing who, that won't last long as it takes man hours that they're not being paid for.

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Sad to say, my personal opinion is that once you have informed somebody else (or in this case had it done for you) it's all over for personal security?

 

The implications of this having been done will become apparent eventually but as usual the remedy will be too late and the miscreants will be away?

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