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12 hours ago, 100milesaway said:

I have  asked my partner if it is OK to speak on here on the prostate subject and he has agreed as we both feel it could help you all understand and help many. My partner was diagnosed as having aggressive  prostate cancer 11 years ago,as his father had died from prostate and bone cancer in his early 70s we were understandably greatly concerned but the cancer was contained within the prostate and had not spread anywhere else. We were told by the head specialist that his treatment would be a course of hormone therapy and 2 daily tablets, Finisteride and Uffofosin.and when his psa had come down they would start the radio therapy..When it did reduce from 9 to 6 his radio therapy started, this consisted of a daily visit a round trip of 80 miles to James Cook hospital in Middlesbrough for 7 weeks The treatment was not invasive was pain free and we met dozens of similar chaps and enjoyed the daily comaradery.His PSA went down to .002. Wonderful we thought....2 years later my partner suffered many episodes of severe bleeding from his rear passage, this is treated by nurse Auntie who administers a nightly enama  which stops the blood flow which has been caused by radiation proctitus.  

After a few more months we discovered that they had also singed his bladder which led to him having to wear a catheter and this results in lots of water infections and blockages due to clotting blood. Due to numerous TERPS and cameras up his urethra they have now had to fit him with something called a Suprapubic catheter which has to be changed by the district nurses every six weeks. We have made hundreds of visits to A%E usually in the night due to water retention.

I have the utmost respect for my partners ability to remain upbeat in the face of adversity he

is 76 years old still goes on 7 mile walks every week and still rides a large  cc motorbike.

My advise to all you chaps out there is please get tested and if you are lucky enough to be offered surgery ( removal ) go for it, a bit of pee is better than what we have suffered,we wernt offered it.  Don't be afraid to ask for help ,they don't  always offer it.

FromAuntie

Thanks for posting 👍👍👍

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Meant to say "don't wait for it to happen"

28 minutes ago, oldypigeonpopper said:

Hello, Now I see GPs are calling for strike action !!!!!, Will that mean we will have to wait longer for an appointment ??

Been waiting 18 month for an appointment with urology department.

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16 minutes ago, claydodger said:

Meant to say "don't wait for it to happen"

Been waiting 18 month for an appointment with urology department.

Hello, It is not getting any easier to get any appointment either GP or Hospital , looking back i am sure from my first PSA test it was 9 months to get an appointment at the Churchill , Hope you get sorted soon👍

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9 minutes ago, oldypigeonpopper said:

Hello, It is not getting any easier to get any appointment either GP or Hospital , looking back i am sure from my first PSA test it was 9 months to get an appointment at the Churchill , Hope you get sorted soon👍

Many thanks, personally I know I've been very lucky and have been fortunate to have the NHS and some private medicare in my corner, but of late the system seems to have broken down, not the medical staff. 

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I haven't posted on this thread since about November as there's not much to say. In a sense I'm pleased that I didn't have any surgical intervention or radio, just 6 rounds of chemo and ongoing hormone therapy. This means that all my bits are still intact and as of last month my levels are still stable. I haven't needed tamsulosin for almost 2 years.

The official line on my condition is that it's "life limiting" and that there's no prospect of remission, but with the realisation that PC is almost as common as breast cancer, there's been a big increase in research and trials. Should my levels start to climb there are already more options for the oncologists than when I was diagnosed in January 2022.

I only get 6 monthly phone consultations now but I do have access to my oncologist via his secretary should I need to talk to him. As others have said, if you're going to get cancer, Gloucestershire is one of the best places around as Cheltenham is a centre of excellence for cancer treatment. 

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2 minutes ago, Westward said:

Gloucestershire is one of the best places around as Cheltenham is a centre of excellence for cancer treatment.

Yes, my father was treated for PC in Cheltenham and ended up - as predicted dying "with it, but not from it" many years after diagnosis at a very reasonable 87.

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