johnphilip Posted November 13, 2023 Report Share Posted November 13, 2023 26 minutes ago, harrycatcat1 said: 2.65 @ 66 years ๐๐๐๐ Good to here.ย Keep getting it checkedย Quote Link to comment Share on other sites More sharing options...
Westward Posted November 13, 2023 Report Share Posted November 13, 2023 2 hours ago, harrycatcat1 said: 2.65 @ 66 years ๐๐๐๐ Sounds good. When I was diagnosed in Jan 22 at 75 my PSA was 2,293. By this summer just gone it was 0.8 thanks to the hormone treatment but I still have cancer and they tell me I always will. The cancer will also become resistant to the hormone treatment at 18-24 months and I'm in that zone now. Next blood test is this Friday. Quote Link to comment Share on other sites More sharing options...
harrycatcat1 Posted November 13, 2023 Report Share Posted November 13, 2023 15 minutes ago, Westward said: Sounds good. When I was diagnosed in Jan 22 at 75 my PSA was 2,293. By this summer just gone it was 0.8 thanks to the hormone treatment but I still have cancer and they tell me I always will. The cancer will also become resistant to the hormone treatment at 18-24 months and I'm in that zone now. Next blood test is this Friday. I will keep my fingers crossed ๐ค for a good result for you ๐๐ 2 hours ago, johnphilip said: Good to here.ย Keep getting it checkedย Thanks ๐ย Quote Link to comment Share on other sites More sharing options...
Westward Posted November 14, 2023 Report Share Posted November 14, 2023 On 13/11/2023 at 17:00, harrycatcat1 said: I will keep my fingers crossed ๐ค for a good result for you ๐๐ Thank you. Much appreciated. Quote Link to comment Share on other sites More sharing options...
harrycatcat1 Posted March 12 Report Share Posted March 12 I have just started with really dry itchy eyes anyone else get this when taking Tamsulosin? Quote Link to comment Share on other sites More sharing options...
steve_b_wales Posted March 12 Report Share Posted March 12 (edited) 10 minutes ago, harrycatcat1 said: I have just started with really dry itchy eyes anyone else get this when taking Tamsulosin? I take Combodart which is a mix of Tamsulosin and Dutasteride. I get an itch in my left eye, but have always had this long before I took the medication. The medication has made it worse if anything. Edited March 12 by steve_b_wales Quote Link to comment Share on other sites More sharing options...
harrycatcat1 Posted March 12 Report Share Posted March 12 (edited) 29 minutes ago, steve_b_wales said: I take Combodart which is a mix of Tamsulosin and Dutasteride. I get an itch in my left eye, but have always had this long before I took the medication. The medication has made it worse if anything. Yes it does make you wonder if its the "drying up" processย ๐ค Edited March 12 by harrycatcat1 Quote Link to comment Share on other sites More sharing options...
johnphilip Posted March 12 Report Share Posted March 12 48 minutes ago, harrycatcat1 said: Yes it does make you wonder if its the "drying up" processย ๐ค When do you take it . I take mine on an eveningย around 7 ishย My doctor said may help you not getting up throughย the night, it helps meย . Speak to your doctor.ย Quote Link to comment Share on other sites More sharing options...
harrycatcat1 Posted March 12 Report Share Posted March 12 1 hour ago, johnphilip said: When do you take it . I take mine on an eveningย around 7 ishย My doctor said may help you not getting up throughย the night, it helps meย . Speak to your doctor.ย I take mine about 09.00 most mornings, I can mainly sleep through till 06.00 tbh I like the "effects" of the pill during the day when I'm out and about. It's the itchy dry eyes that are peeing me off. Quote Link to comment Share on other sites More sharing options...
serrac Posted March 12 Report Share Posted March 12 Tamsulosin did nothing for me and I'm currently recovering from a combined TURP/Urolift operation done privately on Saturday. Saturday night was uncomfortable due to being connected to various tubes including a catheter. When they told me I'd have a catheter in overnight I wasn't too worried thinking it would be a narrow thingy made out of soft latex.ย Nope, think 8mm diameter stiff plastic tube...ย I was glad to see the back of that even if having it removed was "interesting". Pain wise I'm doing fine, they sent me home with Paracetamol and Codeine but I haven't even bothered with the Paracetamol let alone the Codeine.ย My stomach is feeling a bit rough, probably due to the antibiotic they have me on but I finish with that tomorrow. No indication of cancer fortunately - my PSA tested out at 2.56 (at age 64) I must admit the fear of them finding cancer put me off getting looked at for far too long - don't do that, it's irrational. Quote Link to comment Share on other sites More sharing options...
harrycatcat1 Posted March 12 Report Share Posted March 12 1 hour ago, serrac said: Tamsulosin did nothing for me and I'm currently recovering from a combined TURP/Urolift operation done privately on Saturday. Saturday night was uncomfortable due to being connected to various tubes including a catheter. When they told me I'd have a catheter in overnight I wasn't too worried thinking it would be a narrow thingy made out of soft latex.ย Nope, think 8mm diameter stiff plastic tube...ย I was glad to see the back of that even if having it removed was "interesting". Pain wise I'm doing fine, they sent me home with Paracetamol and Codeine but I haven't even bothered with the Paracetamol let alone the Codeine.ย My stomach is feeling a bit rough, probably due to the antibiotic they have me on but I finish with that tomorrow. No indication of cancer fortunately - my PSA tested out at 2.56 (at age 64) I must admit the fear of them finding cancer put me off getting looked at for far too long - don't do that, it's irrational. I had to Google the procedure that you had as I didn't know. I wish you all the best and a swift recovery. Let us know how you get on ๐๐ Quote Link to comment Share on other sites More sharing options...
serrac Posted March 12 Report Share Posted March 12 2 hours ago, harrycatcat1 said: I had to Google the procedure that you had as I didn't know. I wish you all the best and a swift recovery. Let us know how you get on ๐๐ Thanks, will do. Quote Link to comment Share on other sites More sharing options...
serrac Posted July 11 Report Share Posted July 11 On 12/03/2024 at 19:52, harrycatcat1 said: I had to Google the procedure that you had as I didn't know. I wish you all the best and a swift recovery. Let us know how you get on ๐๐ A wee update as promised. So that's ~4 months since I had the procedure and I'd say I'm fully recovered now. For the first few weeks I had some blood in my urine, but no pain. The worst part of the recovery was "urgency", I'd be in the middle of something, not thinking about my bladder at all and I'd suddenly get a violent urge to spend a penny, often barely making it to the bathroom before the flow started without permission.ย I also had a number of instances of waking up during the night with a damp patch on my shorts. I was concerned the operation had damaged my plumbing, but on the follow up visit to the urologist he explained an overactive bladder is a common side effect of an enlarged prostate as the bladder has to work harder to expel urine, which causes these issues when the obstruction is removed. He prescribed a course of medication which settled it down and it's been fine for the past few weeks. I'm very pleased with the result now. Quote Link to comment Share on other sites More sharing options...
shaun4860 Posted July 11 Report Share Posted July 11 Glad things seem to be going ok ๐๐ช Quote Link to comment Share on other sites More sharing options...
JohnfromUK Posted July 12 Report Share Posted July 12 (edited) As above, glad things have worked well and thanks for the update. Edited July 12 by JohnfromUK Quote Link to comment Share on other sites More sharing options...
harrycatcat1 Posted July 12 Report Share Posted July 12 15 hours ago, serrac said: A wee update as promised. So that's ~4 months since I had the procedure and I'd say I'm fully recovered now. For the first few weeks I had some blood in my urine, but no pain. The worst part of the recovery was "urgency", I'd be in the middle of something, not thinking about my bladder at all and I'd suddenly get a violent urge to spend a penny, often barely making it to the bathroom before the flow started without permission.ย I also had a number of instances of waking up during the night with a damp patch on my shorts. I was concerned the operation had damaged my plumbing, but on the follow up visit to the urologist he explained an overactive bladder is a common side effect of an enlarged prostate as the bladder has to work harder to expel urine, which causes these issues when the obstruction is removed. He prescribed a course of medication which settled it down and it's been fine for the past few weeks. I'm very pleased with the result now. Fantastic, thanks for the update and I'm glad that you are pleased with the result ๐๐๐ Quote Link to comment Share on other sites More sharing options...
Stephen303 Posted July 12 Report Share Posted July 12 Hi All, new to this Forum and saw this thread.ย I was diagnosed in 2018 following a routine PSA test. Opted for surgery in early 2019, and five years later still clear. Consider myself very lucky to have caught the cancer early when outcomes are much more favourable.ย ย Quote Link to comment Share on other sites More sharing options...
serrac Posted July 12 Report Share Posted July 12 1 hour ago, Stephen303 said: Hi All, new to this Forum and saw this thread.ย I was diagnosed in 2018 following a routine PSA test. Opted for surgery in early 2019, and five years later still clear. Consider myself very lucky to have caught the cancer early when outcomes are much more favourable.ย ย Welcome to the forum. Glad to hear you are doing well. Keep on top of it Quote Link to comment Share on other sites More sharing options...
Stephen303 Posted July 20 Report Share Posted July 20 thank you. Yup. I have a PSA test every 12 months.ย Quote Link to comment Share on other sites More sharing options...
100milesaway Posted July 25 Report Share Posted July 25 (edited) I haveย asked my partner if it is OK to speak on here on the prostate subject and he has agreed as we both feel it could help you all understand and help many. My partner was diagnosed as having aggressiveย prostate cancer 11 years ago,as his father had died from prostate and bone cancer in his early 70s we were understandably greatly concerned but the cancer was contained within the prostate and had not spread anywhere else. We were told by the head specialist that his treatment would be a course of hormone therapy and 2 daily tablets, Finisteride and Uffofosin.and when his psa had come down they would start the radio therapy..When it did reduce from 9 to 6 his radio therapy started, this consisted of a daily visit a round trip of 80 miles to James Cook hospital in Middlesbrough for 7 weeks The treatment was not invasive was pain free and we met dozens of similar chaps and enjoyed the daily comaradery.His PSA went down to .002. Wonderful we thought....2 years later my partner suffered many episodes of severe bleeding from his rear passage, this is treated by nurse Auntie who administers a nightly enamaย which stops the blood flow which has been caused by radiation proctitus.ย ย After a few more months we discovered that they had also singed his bladder which led to him having to wear a catheter and this results in lots of water infections and blockages due to clotting blood. Due to numerous TERPS and cameras up his urethra they have now had to fit him with something called a Suprapubic catheter which has to be changed by the district nurses every six weeks. We have made hundreds of visits to A%E usually in the night due to water retention. I have the utmost respect for my partners ability to remain upbeat in the face of adversity he is 76 years old still goes on 7 mile walks every week and still rides a largeย cc motorbike. My advise to all you chaps out there is please get tested and if you are lucky enough to be offered surgery ( removal ) go for it, a bit of pee is better than what we have suffered,we wernt offered it.ย Don't be afraid to ask for help ,they don'tย always offer it. FromAuntie Edited July 25 by 100milesaway Quote Link to comment Share on other sites More sharing options...
oldypigeonpopper Posted July 25 Report Share Posted July 25 Hello, I have been on active surveillance for 10 years with the Churchill in Oxford and so far so good, although as a precaution this year i have another scan on the 1st , this has not been without some fraught times, Surgery loosing PSA results, and up and down results over the years, but i count myself lucky so far but will see how the scan goes this time, as a side note my consultant asked my GP to do another blood test as i have not been to good of late, That was 3 weeks ago and still waiting๐ Quote Link to comment Share on other sites More sharing options...
oowee Posted July 25 Report Share Posted July 25 14 minutes ago, 100milesaway said: I haveย asked my partner if it is OK to speak on here on the prostate subject and he has agreed as we both feel it could help you all understand and help many. My partner was diagnosed as having aggressiveย prostate cancer 11 years ago,as his father had died from prostate and bone cancer in his early 70s we were understandably greatly concerned but the cancer was contained within the prostate and had not spread anywhere else. We were told by the head specialist that his treatment would be a course of hormone therapy and 2 daily tablets, Finisteride and Uffofosin.and when his psa had come down they would start the radio therapy..When it did reduce from 9 to 6 his radio therapy started, this consisted of a daily visit a round trip of 80 miles to James Cook hospital in Middlesbrough for 7 weeks The treatment was not invasive was pain free and we met dozens of similar chaps and enjoyed the daily comaradery.His PSA went down to .002. Wonderful we thought....2 years later my partner suffered many episodes of severe bleeding from his rear passage, this is treated by nurse Auntie who administers a nightly enamaย which stops the blood flow which has been caused by radiation proctitus.ย ย After a few more months we discovered that they had also singed his bladder which led to him having to wear a catheter and this results in lots of water infections and blockages due to clotting blood. Due to numerous TERPS and cameras up his urethra they have now had to fit him with something called a Suprapubic catheter which has to be changed by the district nurses every six weeks. We have made hundreds of visits to A%E usually in the night due to water retention. I have the utmost respect for my partners ability to remain upbeat in the face of adversity he is 76 years old still goes on 7 mile walks every week and still rides a largeย cc motorbike. My advise to all you chaps out there is please get tested and if you are lucky enough to be offered surgery ( removal ) go for it, a bit of pee is better than what we have suffered,we wernt offered it.ย Don't be afraid to ask for help ,they don'tย always offer it. FromAuntie Good advice and thanks for posting. I hope your bloke is on the right side of this.ย Its a tricky subject for blokes and the more its discussed the more everyday it becomes.ย Quote Link to comment Share on other sites More sharing options...
100milesaway Posted July 25 Report Share Posted July 25 46 minutes ago, oldypigeonpopper said: Hello, I have been on active surveillance for 10 years with the Churchill in Oxford and so far so good, although as a precaution this year i have another scan on the 1st , this has not been without some fraught times, Surgery loosing PSA results, and up and down results over the years, but i count myself lucky so far but will see how the scan goes this time, as a side note my consultant asked my GP to do another blood test as i have not been to good of late, That was 3 weeks ago and still waiting๐ Keep asking for one,the consultants and GPs no longer have good admin most of the consultantsย secretary's are still working from home.ย From Auntie. Good luck. Quote Link to comment Share on other sites More sharing options...
Dave66 Posted July 25 Report Share Posted July 25 After reading this thread I asked for a PSA test to be done along with my annual cholesterol blood test, all OK which is great peace of mind, thank you for keeping this thread going as a reminder. It is just a shame you have to request it and justify it. Quote Link to comment Share on other sites More sharing options...
oldypigeonpopper Posted July 26 Report Share Posted July 26 9 hours ago, 100milesaway said: Keep asking for one,the consultants and GPs no longer have good admin most of the consultantsย secretary's are still working from home.ย From Auntie. Good luck. Hello, I am going to contact the consultant when i go for a scan on the 1st Quote Link to comment Share on other sites More sharing options...
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