TIGHTCHOKE Posted June 5, 2020 Author Report Share Posted June 5, 2020 Good afternoon Gentlemen, Just got up, working a few night shifts at the moment. Well well well, what a predicament, we have the funds and need to establish a way in which they help Martin and do not get wasted by the sisters. Interesting times. Quote Link to comment Share on other sites More sharing options...
Mice! Posted June 5, 2020 Report Share Posted June 5, 2020 1 hour ago, TIGHTCHOKE said: Good afternoon Gentlemen, Just got up, working a few night shifts at the moment. Well well well, what a predicament, we have the funds and need to establish a way in which they help Martin and do not get wasted by the sisters. Interesting times. If it was bought for Jackie😉😉 but she let Martin use it, they couldn't touch it?? Quote Link to comment Share on other sites More sharing options...
millrace Posted June 5, 2020 Report Share Posted June 5, 2020 Rehab/private 1 to 1 physio to aid recovery,, pay for a coarse of treatment/assistance that cant be sold by others...rather than ipad which can disappear.... Quote Link to comment Share on other sites More sharing options...
Lloyd90 Posted June 6, 2020 Report Share Posted June 6, 2020 Apologies but who is Jackie? Martins partner? His sisters don’t get to decide who visits him and it sounds like he wouldn’t have given them LPOA either. Quote Link to comment Share on other sites More sharing options...
mad1 Posted June 6, 2020 Report Share Posted June 6, 2020 Yes Jacki is Martin's partner . Quote Link to comment Share on other sites More sharing options...
hodge911 Posted June 6, 2020 Report Share Posted June 6, 2020 2 hours ago, Lloyd90 said: His sisters don’t get to decide who visits him I've wondered this from the beginning .... correct me if I'm wrong but do partners even if not married have the rights to visit when they want ? Ans surely if martin in improving how ever slightly it may be if he is in control of senses in some way can he not say who visits him by way of some type of response to questions asked of him ? ...... Knowing him as I do he'd be livid at what's going on Quote Link to comment Share on other sites More sharing options...
Mice! Posted June 6, 2020 Report Share Posted June 6, 2020 18 hours ago, millrace said: Rehab/private 1 to 1 physio to aid recovery,, pay for a coarse of treatment/assistance that cant be sold by others...rather than ipad which can disappear.... Good shout, I'm sure the nhs provides great support but the better the help early on the greater the chances of recovery Quote Link to comment Share on other sites More sharing options...
AVB Posted June 6, 2020 Report Share Posted June 6, 2020 48 minutes ago, Mice! said: Good shout, I'm sure the nhs provides great support but the better the help early on the greater the chances of recovery Sounds a good idea. Quote Link to comment Share on other sites More sharing options...
hawkeye Posted June 6, 2020 Report Share Posted June 6, 2020 2 hours ago, hodge911 said: I've wondered this from the beginning .... correct me if I'm wrong but do partners even if not married have the rights to visit when they want ? Ans surely if martin in improving how ever slightly it may be if he is in control of senses in some way can he not say who visits him by way of some type of response to questions asked of him ? ...... Knowing him as I do he'd be livid at what's going on Hi Pete from what i can gather his sisters have been to see him but the hospital is on lockdown no visitors allowed due to corona 19 Jacki rings the ward sisters in the hospital to get updates on martin... 1 hour ago, AVB said: Sounds a good idea. private rehab is ok but then he has nothing to remember what his mates on here have done for him at least if he has an iPad he can think of PW every time he uses it... Quote Link to comment Share on other sites More sharing options...
ditchman Posted June 6, 2020 Report Share Posted June 6, 2020 1 hour ago, hawkeye said: Hi Pete from what i can gather his sisters have been to see him but the hospital is on lockdown no visitors allowed due to corona 19 Jacki rings the ward sisters in the hospital to get updates on martin... private rehab is ok but then he has nothing to remember what his mates on here have done for him at least if he has an iPad he can think of PW every time he uses it... QUITE AGREE....... Quote Link to comment Share on other sites More sharing options...
Lloyd90 Posted June 6, 2020 Report Share Posted June 6, 2020 2 hours ago, hawkeye said: Hi Pete from what i can gather his sisters have been to see him but the hospital is on lockdown no visitors allowed due to corona 19 Jacki rings the ward sisters in the hospital to get updates on martin... So the reality is Jackie hasn’t been to see him because of Covid restrictions not because of his sisters ... Quote Link to comment Share on other sites More sharing options...
7daysinaweek Posted June 6, 2020 Report Share Posted June 6, 2020 Establishing capacity is first and foremost and it sounds like LG is making encouraging aspects to his recovery and could possibly infer that he has capacity to an extent. There is no legal definition of next of kin NOK (outside of under 18) in the uk and just because Martin has blood sisters that does not automatically mean they are the nok and a spouse or living cohabiting partner would be assumed nok ,I would think in this situation given the limited information. As Llody90 says if any Lasting power of attorney (LPA) was in place for him it does not sound like it would be with his sisters given the information in the thread and more likely assumption would be his partner Jackie. If there is a LPA it may be for financial decisions only and not health and welfare decisions if any. In the absence of a advanced decision from LG any medical and nursing staff decision would/should be made in the patient best interests, wishes if known and respecting his values and the law is clear on this. These decisions should be discussed with the family (blood and/or cohabiting civil union/ relatives and or/spouse/friends) when appropriate to do so. Family members who wish to give guidance/input must be sure that this is given freely, not under duress and "based upon reasonable judgement of their relative's wishes." With this and given the additional circumstances if he has been co habiting with long term partner Jackie she would have every right to be visiting him and as Llyod says his sisters do not get to decide. Given the situation it would be extremely reasonable to assume from the staff point that Jackie is his nok. Regarding the sisters allegedly telling the nursing staff for him to be made to answer his phone, if they deem him to have capacity or him not having capacity and being given the phone would apparently go against his known wishes or cause him distress the staff would/should not compel him to answer the phone. The five key principles of the Mental capacity act (MCA) are: ● There is a presumption that a person has mental capacity unless proved otherwise ● Only after all practical steps have been taken to help a person make their own decision, should they be treated as incapable of doing so ● It should not be presumed that a person lacks mental capacity just because they make an ‘unwise’ decision ● Any acts carried out on someone’s behalf should be done in their best interests ● Before acting for a person lacking mental capacity, consideration should be given as to the least restrictive way of achieving the desired outcome These principles are set out in the MCA to ensure that people are involved as much as possible in decisions about their own personal affairs. Some good suggestions in the threads Re private rehab may be less limited in what it may achieve up and above what the NHS provides as part of it's 'stroke rehabilitation program' , after a stroke this is a comprehensive program which includes short and long term input dependent on patient goals and outcomes from the following support services. Doctors and gp ,physiotherapists, clinical psychologists, occupational therapists, speech and language therapists, specialist swallow nurses, dietitians, community matrons, district nurses and of course social workers. I am not dismissing the idea as a whole but something to think about. Some private institutions that offer stroke rehabilitation services do not have data sharing agreements with the nhs and the general practitioner so may have to make an assumption of clinical needs on a less limited basis until the patient accesses their patient record. The patient can make a request for their full medical notes under the GDPR act in which the trust or gp has to respond to the request within 30 days. I have known individuals who accessed private post hospital rehabilitation through their own insurance and said that they felt their outcomes were improved by going private, conversely I have known patients have similar outcomes and more improved outcomes that were referred to the same non NHS private stroke rehabilitation clinics through an NHS contract which is common practice enabling patients, families and cares to achieve the best outcomes. Seen lots of patients undertake the nhs stroke clinic rehab program and have fantastic outcomes also. All that said rehabilitation is in a large part commensurate of the psychological and behavioral goals of the individual, families and carers. Newcastle hospitals and community services trusts have some of the best stroke rehabilitation service in the country. This is just some of my thoughts and I am sure there are others on PW who may be more suitably informed to give further input. As in life the sad thing is people come out of the woodwork in these unfortunate times. atb 7diaw Quote Link to comment Share on other sites More sharing options...
TIGHTCHOKE Posted June 6, 2020 Author Report Share Posted June 6, 2020 Some interesting points being raised. We've raised the money, it cannot be beyond our capabilities to get it to the person who needs the help. Quote Link to comment Share on other sites More sharing options...
hawkeye Posted June 6, 2020 Report Share Posted June 6, 2020 7 hours ago, Lloyd90 said: So the reality is Jackie hasn’t been to see him because of Covid restrictions not because of his sisters ... will check that out when i next speak to her and let you know.. Quote Link to comment Share on other sites More sharing options...
Lloyd90 Posted June 6, 2020 Report Share Posted June 6, 2020 31 minutes ago, hawkeye said: will check that out when i next speak to her and let you know.. If Jackie is being restricted by the sister's from seeing him and she is his partner, it's bordering on a human rights violation. People throw this stuff around willy nilly, but you'd be surprised how serious hospitals and public bodies take it (and so they should). Everyone like a good winge about human rights... but they literally protect you all the time. If Jackie is his partner she can visit (although with Covid it might be sensibly not to). Quote Link to comment Share on other sites More sharing options...
ditchman Posted June 7, 2020 Report Share Posted June 7, 2020 well the main thing is.........the collection is safe and hasnt gone anywhere.........so i think we should tread carefully and take our time...even it means waiting for geordie to become more independent....so he can take posesesion of whatever at least that way....nobody will be fighting over what he gets...when he is not in a position to defend himeself......... Dave /Hawkeye....just take it slowly......it will come right Quote Link to comment Share on other sites More sharing options...
hawkeye Posted June 7, 2020 Report Share Posted June 7, 2020 Ditchman don't worry im in no rush i can wait till we know for certain its going where we want it to go, peeing down here so no shooting so will try to get hold of Jackie today and have a chat with her.. Mike Quote Link to comment Share on other sites More sharing options...
TIGHTCHOKE Posted June 7, 2020 Author Report Share Posted June 7, 2020 16 minutes ago, hawkeye said: Ditchman don't worry im in no rush i can wait till we know for certain its going where we want it to go, peeing down here so no shooting so will try to get hold of Jackie today and have a chat with her.. Mike We will make this work, we've come too far to just give in. Quote Link to comment Share on other sites More sharing options...
hawkeye Posted June 8, 2020 Report Share Posted June 8, 2020 Haven't spoken to Jackie today been to busy ( house work is never ending ) but just got this text from her..... Hi Martin has now had his feeding tube removed and is doing well with feeding himself , they are monitoring his weight but he’s doing really well , nurses say Martin is desperate to be independent x Quote Link to comment Share on other sites More sharing options...
TIGHTCHOKE Posted June 8, 2020 Author Report Share Posted June 8, 2020 Thanks for the good update Hawkeye. Quote Link to comment Share on other sites More sharing options...
ditchman Posted June 8, 2020 Report Share Posted June 8, 2020 i think the choice of a good i-pad or whatever is good.............he needs to be well connected....will really lift his spirits and that will in turn help his recovery... 57 minutes ago, hawkeye said: Haven't spoken to Jackie today been to busy ( house work is never ending ) but just got this text from her..... Hi Martin has now had his feeding tube removed and is doing well with feeding himself , they are monitoring his weight but he’s doing really well , nurses say Martin is desperate to be independent x Quote Link to comment Share on other sites More sharing options...
hawkeye Posted June 8, 2020 Report Share Posted June 8, 2020 Just spoken to Jackie martin is doing well i asked her if she had been into hospital to see Martin, she had been when it first happened and he was in the RVI on 17 th march then on the 23 rd march he was moved into the Freeman and she has not seen him since as that was the day the hospital went onto lockdown the sisters haven't seen him either sine he was moved, Jackie has a friend that works in the hospital she see her when the friend is doing her shopping and goes though Jackie till in the supermarket.. Jackie said martin has had a fall this afternoon he's ok no injury, but they say he is trying to be independent now his tubes have been taken out he is wanting to go for a walk all the time she has been told he could well be going to walkergate around the 23rd this month for more rehab the longest they stay there is 6 months then he could be sent home with carers. will keep updating as and when i get any news.. Mike Quote Link to comment Share on other sites More sharing options...
TIGHTCHOKE Posted June 8, 2020 Author Report Share Posted June 8, 2020 Hawkeye, thank you for the update. Quote Link to comment Share on other sites More sharing options...
TIGHTCHOKE Posted June 8, 2020 Author Report Share Posted June 8, 2020 Just checked the donation total and we have passed £1700 Thank you all very much. Quote Link to comment Share on other sites More sharing options...
mel b3 Posted June 8, 2020 Report Share Posted June 8, 2020 Thank you for the update Mike. It's amazing just how amazingly well some people recover following a stroke. Quote Link to comment Share on other sites More sharing options...
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